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About us

Background

The Shane Project is a charity for African/Caribbean & Ethnic Minority People living with MS, their families and carers. It was founded in April 2002 by Norma McFarlane whose two sons were diagnosed with MS. It is named after her eldest son Shane who was diagnosed with Primary Progressive in 1993 but sadly passed away in December 2003.

Based on Norma's personal experience following Shane’s illness; the lack of available support which was further compounded by isolation, prejudice and stigmatisation that she and her family endured from the local community, prompted her to set up.

The Shane Project. The primary aim being to raise awareness, reduce isolation and help improve the quality of life and independence especially for African/ Caribbean and Ethnic Minority People living with Multiple Sclerosis, their families and their carers. The Shane Project is independent and provides services particularly to Black & Ethnic Minority people. It complements the work of the MS Society by filling in the gap in services for BME people with MS, their families and carers. It works in partnership with the MS Society, MS Trust, MS Action and other MS organisations and local support groups as well as MS research institutions such as Kings College, UCLH amongst others towards supporting all efforts to advance the treatment and research for the investigation and cure of MS. Back to Homepage